9th December 2015: Sydney, Australia
Does anyone else have feelings where they are intent on entering a 100 metre sprint, but instead find you are actually at the starting blocks of the hurdles with many obstacles ahead? My reasoning for the above question stems from the disappointment encountered when visiting my Professor today. Prior to the appointment, I was focused on having discussions based around the timeframes for my chemotherapy to finish, inevitably placing me in a position whereby I am capable of re-entering the workforce in the new year. How circumstances can change. I walked out of the hospital with another two month supply of chemotherapy whilst weighed down by future predictions about how I can support a future family and find satisfaction in my choice of employment if needing to stay on chemotherapy for an indefinite period of time. Admittedly, I may be a little over dramatic, and should note my appreciation for life, especially in the short term, however, at times it seems the cloud of uncertainty hovering over me can temporary blind me to the love and gratitude I currently have for my life.
27th July 2015: Sydney, Australia
An undeniable disparity exists between the time taken to obtain the current level of mobility compared to the period post-surgery 18 months ago. I strongly believe the difference contributes to the maintenance of my overall health since making changes to my lifestyle. I recognise many may disagree, citing a belief that a second procedure on the same area on the body is less demanding. Admittedly, I can the logic in this stave, however, will stand firmly in believing the major changes derive from the mindset created leading up to the surgery, compounded by a reduction in stress surrounding the entire process. In addition, the focus placed on nutrition and movement over the past year has surely placed my body in the very best position to heal and recover in such a short period of time.
The factors mentioned above reinforce the need to invest further on varying aspects within my life, including an emphasis on fuelling my body wholly with real food. I must note that again I will not subscribe to any diet. Instead, the belief of promoting my health through eating whist placing the least amount of stress on my body will be continued.
For those interested, please message for details of a typical approach to food adopted on a daily basis for those interested.
17th July 2015: Westmeed Hospital, Sydney, Australia
I believe I will now finally adhere to never focusing on timeframes in terms of my recovery. It was a point heard very early in my Cancer experience, and continually I have failed to apply the term within my life. Consequently, low periods surfaced when a timeframe was not met, and as a result it felt like the foundation of my belief system slightly crumbled with each disappointment. Numerous examples in regards to the topic of timeframes can be drawn upon, and recently, my time in hospital has reinforced the need to not think of timeframes.
I was meant to leave hospital on Saturday with all three procedures complete. I was then informed the departure date would be two days ago plus an additional admission was required, and now I won’t be out till Tuesday (at earliest). Although it is a small matter, it is another example of delays and possible disappointment. I was literally five minutes away from having the needed procedure that was the reason for keeping me here till Tuesday, and I was just informed the surgical team did not read the notes provided by the Endocrine team regarding the levels of Cortisol essential for the procedure. So, now it has been delayed till the appropriate levels are administered intravenously. Obviously, major differences exist between a slight delay and other more important areas in my life. Plus, I am possibly overreacting, however, it has again made me consider the very poignant point first exposed to at the beginning of my Cancer experience.
8th April 2015: Sydney, Australia
I view attention to rest as concrete evidence of the dawning of a new reality present in my life, particularly when bearing in mind the area was overlooked prior to being forced by the discovery of Cancer to review my behaviour and actions. A key point to highlight from the entirety of this Cancer journey is the opportunity to fully focus on myself, including the scheduling of rest into my life whilst also not allowing a stance to be adopted whereby the period is viewed with pity, regretfulness and loss. Admittedly, ample entires document the varying thoughts circulating throughout my mind, some far from positive, however, the fluctuating thoughts appear essential to create a narrative about the experiences I continually face.
Personally, the whole situation needs to be looked at with perspective, and most importantly, it is imperative to create new scripts to block old patterns from rearing a presence in my life again. I acknowledge many more challenges await, and similar to any other person, the obstacle for me entails remaining focused, driven and motivated on my goals. A factor holding more weight when the rigours and demands of everyday life demand greater attention. To conclude, I must say, with all the feelings and emotions attached to the circumstances endured, I would deem myself to be relatively happy. Therefore, my motivation, focus and drive needs to centre upon achieving greater happiness in all areas of my life, completely unrestricted by any diagnosis, fears or factors associated with having Cancer.
6th March 2015: Sydney, Australia
I write this in a Endone haze, en-route to the dentist. At 5am last night, I woke to a throbbing agony coming from my mouth. I was only able to endure roughly five minutes of pain prior to taking 5ml of an opiate based medicine called Endone. Another five minutes past before a consecutive tablet was consumed. Subconsciously, I think a comparison to the last time I woke in agony from my sleep triggered the decision to take the tablets, and I honestly believe the pain-relief has eased some anxiety linked to a fear of whether the pain is a new Cancer. In addition, the decision acted in accordance with the recommendation of the Anaesthetist when last in hospital whereby I was informed it was better to get on top of the pain before it escalates rather than waiting till it gets stronger.
On reflection, my response this morning was probably over dramatic, causing unnecessary stress for my parents, and situations as such are still an area I am yet to conquer. In typical circumstances an ache from my mouth would have been associated with a need for dental appointment, and when taking the time to sit back to analyse the situation, it seems probable of this outcome proving to be accurate. The difficultly is the slight niggle of wondering whether it is Cancer related. Therefore, a sequence of highly rushed events follow, leaving a trail of destruction around me, including panic, stress and associated expenses. If one point was to be highlighted it would be a vulnerability evident in my life, and it appears at these certain times, a crack in my armour can easily be be made, resulting in an over-reaction. As mentioned, it is an area I am yet to conquer, and very similar to the incident whereby I called the ambulance due to the blood coming out of my mouth whilst brushing my teeth. There is an irony of the paradox existing in the attempt to support others implement a plan in their lives for similar moments, yet, it is the very area I am yet to have confidence in applying myself.
I am hopeful it is just an ache associated with my teeth, and a massive over-reaction, however, it reinforces a number of keys points. Most notably, my reliance on the support from parents; the immediate seeking of attention from the Professor overseeing my care for advise when struck with a cause of concern; the negative effects of Endone after consuming the tablets, and the reality of the Cancer experience still heavily effecting my life. The positive to draw from these points is the fact that the Sunflower Framework covers all these topics, and although I am aware no script for all people can be devised, it seems probable others would experience similar concerns. Therefore, a strength in the content seems to shine, and hopefully an opportunity is provided for a pilot to be operated over the coming year to truly test the benefits for other people with Cancer.
1st March 2015: Sydney, Australia
An ever constant doubt about the relationships in my life, future job prospects and my overall identity have resulted in the formation of a concept to help switch my mind into a mode whereby change is possible. A need to support my thinking resulted from an increasing amount of stress placed on my mind and body from the factors mentioned above. The idea is fairly basic, with the foundations based on a strategy where mental imagery is used in coordination with a directed focus of giving sufficient space to matters of importance so they can be processed rather than blocked into my subconscious. Application of the concept is relevant to the emotions involved in breaking up with my ex-girlfriend whilst also playing a role in managing the feelings associated in response to the knowledge of living on Chemotherapy due to the removal of the Cancerous tumour growing inside me.
A description of the concept entails centring upon the matter causing stress, then mental imagery is used to create a visualisation of my hands letting go of balloons as a means of signifying the release of the stress from my mind and body. I have found an increased size of balloon correlates directly with a greater intensity of thoughts. Furthermore, the idea has also expanded at peak periods whereby I need to actually physically open and release my hand to replicate a bunch of balloons flying away from my hands. Interestingly, the created image was not planned in advance. Rather, the use of balloons came to my consciousness whilst attempting to find acceptance in both situations and was seen to be a fitting image, especially with the symbolism connected to letting a bunch of balloons release from your hands. To conclude, I must add there is no research to support the proposed strategy, and it may not be useful for all, however, it has proved useful for circumstances, so I wished to share it with others.
17th January 2015: Sydney, Australia
I had thought attention on my Cancer has been decreasing over time, and had hoped for this to continue throughout the many more prosperous years to follow. I still don’t think an example today needs to shift my future course, however, an event to possibly reconsider the situation in terms of the impact rather than the attention. A conversation with my mum yesterday brought me to this position. For the first time, my mum provided details of her feelings during the three days after receiving the phone call when I informed them that I had a tumour. On a personal level, I was happy in revisiting some of the decisions made, including the avoidance of going to full details with my parents over the phone, namely in relation to the size of the tumour. One specific moment was the initial contact made when holding a conversation with my dad, and to note, I knew the tumour was approximately 15cm, and was thought to be Cancerous. Parts of the conversation entailed:
Dad: Well how big is it?
Me: Pretty big
Dad: A grape?
Me: Yeah about that, it’s pretty big
Now, some may argue honesty was needed, however, I completely disagree. The main points were conveyed, namely, I had a Cancer, and secondly, it was fairly large. In addition, plans were exchanged about my care and when results would be available. The interesting and upsetting information for me was what followed. Mum said that Dad went to the city the next day and cried the whole day, then the following day, both mum and dad followed the same route as the day previous, yet this time they were both crying. For me, that right there is evidence of the impact of Cancer!
I also feel a chain of events directly caused by that conversation unfolded throughout the weeks and months to follow. Similar to any grieving process, evident negative events seemed to surface, and in this instance, an increase in stress and worry compounded by the drinking of alcohol seemed to have featured within the family home. I am not at all meaning to highlight the negative points. Simply, describe some of secondary factors associated with Cancer. On a positive note, the support that continues to be accessible seems unmatched, and the very factors in life that are invaluable and forever remembered. It must be noted that the focus are all internal descriptions, and I wonder what factors will be remembered and live on for my parents. I imagine, our memories will greatly vary!