Why why why!

9th December 2015: Sydney, Australia

Does anyone else have feelings where they are intent on entering a 100 metre sprint, but instead find you are actually at the starting blocks of the hurdles with many obstacles ahead? My reasoning for the above question stems from the disappointment encountered when visiting my Professor today. Prior to the appointment, I was focused on having discussions based around the timeframes for my chemotherapy to finish, inevitably placing me in a position whereby I am capable of re-entering the workforce in the new year. How circumstances can change. I walked out of the hospital with another two month supply of chemotherapy whilst weighed down by future predictions about how I can support a future family and find satisfaction in my choice of employment if needing to stay on chemotherapy for an indefinite period of time. Admittedly, I may be a little over dramatic, and should note my appreciation for life, especially in the short term, however, at times it seems the cloud of uncertainty hovering over me can temporary blind me to the love and gratitude I currently have for my life.

How Cannabis Oil will influence planning

7th September 2015: Sydney, Australia

The yoga class to be undertaken in approximately an hour will signal the progression to a new stage of my recovery. The latest addition of movement form part of a longterm plan to once again have a week consisting of activities including: surfing, swimming, yoga and calisthenic training. A point to be explored is how the use of Cannabis Oil will impact my future plans, particularly how I will be able to function when completing the nominated activities. It seems very probable for a crossover to exist between the time of finishing the course of oil and adding further movement into my life. Interestingly, the use of Cannabis Oil has taken away all fatigue previously experienced from my chemotherapy. A point never thought possible, especially bearing in mind the typical correlation Cannabis has with lethargy. Admittedly, I am not fatigued or feeling nauseous, yet, a haze exists in my thinking whilst my body becomes utterly relaxed. Therefore, questions loom in regards to whether the temporary elimination of fatigue will result in further movement or alternatively the relaxed state will negatively influence the capacity to push myself. Of course, this is all speculation, so will only time will tell in how well I adapt to the circumstances.

Matcha Green Tea = ?

28th August 2015: Sydney, Australia

Honestly, it seems a gigantic hole of worry and fear can take complete control of me when just the slightest pain or discomfort is experienced. For instance, I had a cup of Matcha Green tea this morning, and am currently writing this entry seven hours later, crouched over in agony from the stomach cramping endured throughout the day. I was totally unprepared for such a reaction, and have only made the connection between the tea and intense cramping when looking at the many online posts. Obviously, it doesn’t just stop with a thought of it deriving from the tea. The big ‘what if’ questions looms large within my thought process, and it is comparable to a fallen group of large boulders on a road whereby I can find now way of getting through the predicament. I acknowledge it is a massive overreaction, especially bearing in mind how well I have been recently progressing, however, it is clear evidence of how easily fear can surface within my consciousness.

Desicions about chemotherapy

24th August 2015: Sydney, Australia
Today, I made contact with a young person who is also overseen by my Professor. The young person had a reoccurrence of Adrenal Cancer (ACC) that spread to his lungs, however, now, approximately five years since finishing a course of Mitotane (chemotherapy for ACC), he is completing his first year at University. It is excellent to hear he is pursuing his studies, especially after being forced to face the journey at such a young age.

Interestingly, the conversation left me more confused about what actions to pursue in the future, namely, whether the course of Mitotane should continue. The young person had strong negative views about the drug, labelling it as a pesticide. Honestly, there is no surprise about his views after hearing the difficulty he endured over the period of 18 months. In terms of my own body, it is a decision I need to make, and whilst seemingly appearing to continue living without major disturbances from any side-effects, there appears to be a safety net associated with taking the drug. There is some irony in seeing the drug as a safety net, especially when bearing in mind my levels were so high, they were actually within a range deemed toxic before the Cancer resurfaced. The question surely becomes why is it viewed a safety net, especially when little success was achieved? I believe the matter could be debated long and hard, particularly being aware a lot of people would proclaim the drugs may be detrimental to my immune system and overall capacity to heal. In response, the only point coming to mind is the thought of not giving myself every opportunity to life should the drugs discontinue.

Serious questions need to be asked about whether the easiest option is necessarily the best option?

10th February 2014: Sydney Australia

The events last night stained me with memories forming the basis of this entry. It all started with the ever familiar feeling of a nausea crippling all thoughts, motivation, strength and focus. Moreover, these thoughts were compounded by a repulsive odour that was passing throughout my system. An odour, toxic enough to test the fine line between feeling nauseous and vomiting (sorry if too much details). I recall thinking, ‘just one more year’. Fortunately, I soon realised this chain of thinking was not productive, so I pushed through the discomfort in order to complete some mental exercises enabling me to switch the thought process into a state of acceptance. I need to acknowledge the indisputable fact that side-effects will occur whilst also recognising the many flaws that exist in setting a timeframe for when the side-effects will finish, hence, the reason to instead seek for a degree of acceptance with my circumstances.

I stated many flaws could be outlined, and two main limitations will be explored. To commence, the most obvious point surely must relate to a possible scenario of being placed in a situation in a year from now where the recommendation to continue with the course of treatment is received. The reality of the outcome mush be highlighted, especially bearing in mind the mixed input received from varying professionals who have been involved in my care. An overview to portray the previous point entails a recommendation from the team of doctors in the UK who believe I should remain on the medication for a period of five years, with an indication of a maintenance dose for the entirety of my life. Secondly, my case was presented to doctor from the USA who is a specialist in the area, agreeing with a timeframe of no less than five years till review. Thus, as noted, a continuation of the treatment for more than a year could be a very real possibility. If so, what happens when I am feeling like this next year? What sense of hope can be derived from a situation when faced with another loss, especially with no finish line ahead. It is for this reason why an acceptance of uncomfortable and upsetting situations needs to be found within my life. It is not easy, however, it seems a far better approach than setting in place potentially harmful timeframes.

The second point is the growing inclination to use some form of prescription drugs to just sleep at night as a means of taking away any discomfort. A temporary solution in extreme circumstances, however, if taken on every occasion I feel nauseous, then I believe a reliance could easily be integrated into my weekly routine. Furthermore, serious questions need to be asked about whether the easiest option is necessarily the best option? In addition, I am unable to shift my view of seeing the action of taking a pill to relive any suffering as truly not doing all I can to overcome this situation. Again, this point would be contentious, and all people would vary in their approach, however, I feel a testing of my mind and body is definitely in process. Therefore, what reflections can be drawn from me taking the easy option? I am not advocating for suffering, yet, I would prefer a period of difficult is worked through by building my internal resources rather than a temporary remedy is taken in the form of a tablet. Finally, and is probably the primary reason for not considering use of any substance at this stage is due to very likely sedated effect on my body and mind th following mornjng. Therefore, I actually see the decision as counterproductive, and prolonging the period whereby I am incapable of undertaking routine tasks.